ISPOR Europe Research Poster:

The Use of Patient and Carer Perspectives and Real-World Evidence in Orphan Disease Health Technology Assessment Submissions

Authors: Stephanie SwiftShona LangRegina LeadleyEmily HardyAlex JenkinsKatriona WithersAmelia Peddle, Gabrielle Redhead

Presenter: Shona Lang

Presentation Time: Wednesday 20th November, 9.00am–11.30am

In this short video, Stephanie Swift (Senior Consultant – Systematic Review) introduces the research:

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    References for our poster:

    1. NIHR. UK standards for public involvement: Better public involvement for better health and social care research. 2019. Available from: https://healthandcareresearchwales.org/public-help-research/uk-standards-public-involvement. Accessed: October 2024.
    2. NHS England. Accelerated Access Collaborative Patient and Public Involvement: Strategy 2021-2026. 2022. Available from: https://www.england.nhs.uk/aac/publication/accelerated-access-collaborative-patient-and-public-involvement-strategy/. Accessed: October 2024.